Posted in Advocacy, Down syndrome, Family on Nov 29th, 2008 3 Comments »
So you’ve given birth to a kid with Down syndrome (DS)? Congrats! Whether you knew before birth or not, settle in, because it’s time to get busy. (“Did you know?” will likely be one of the most common questions you’ll get. It refers to “Did you know you were having a kid with DS before [...]
Posted in Down syndrome on Nov 29th, 2008 No Comments »
Just happened today. I got scared that I might not ever have a conversation with Ava. And then I quickly realized that I do. Everyday. We have a lot to say to one another. We just use our hands more than our mouths to do so.
Posted in Down syndrome, Family, Thoughts on Sep 14th, 2008 1 Comment »
I first noticed them signing while I was waiting to board a flight from Denver to San Jose. One was a tall, skinny, balding white guy about my age and the other a black boy who was maybe 10 or 11 years old. There was nothing extraordinary about either except that they were signing. It [...]
Posted in Advocacy, Down syndrome on Aug 23rd, 2008 2 Comments »
For the intellectually disabled and their families, it’s just as bad as the “N”-word. By Maria Shriver August 22, 2008 This has been a year filled with teachable political moments. Racism, sexism, ageism and “change” have been debated at kitchen tables and water coolers across America. But this last week, those gathered around my kitchen [...]
Posted in Advocacy, Down syndrome, Family on Aug 18th, 2008 2 Comments »
Gifts video on YouTube
Posted in Advocacy, Down syndrome on Aug 15th, 2008 No Comments »
By Soeren Palumbo I want to tell you a quick story before I start. I was walking through hallways, not minding my own business, listening to the conversations around me. As I passed the front door on my way to my English classroom, I heard the dialogue between two friends nearby. For reasons of privacy, [...]
Posted in Down syndrome, Family on Aug 14th, 2008 1 Comment »
Be a friend to someone new. Reach out to create positive momentum. Change our culture by eliminating one small word from your vocabulary.
Posted in Down syndrome, Thoughts on Jan 5th, 2008 1 Comment »
It’s been an interesting time betwix Ava and I lately. She’s really clingy and I can’t help but think: is it just a typical 3-year-old phase, or does it have something to do with Down syndrome? I think one of the things that has me wondering is that that, up until now, she’s always been [...]
Posted in Down syndrome, Family on Dec 17th, 2007 4 Comments »
She’s done it before for Amy, and tonight she did it for me. She looked at her name printed on a step stool and signed in ASL the letters a-v-a. Then smiled and pointed at herself. The extraordinarily cool thing about this is that neither Amy nor I have been practicing signing her name with [...]
Posted in Down syndrome on Nov 27th, 2007 No Comments »
A recent letter from Mitchell Levitz, Self Advocate, National Down Syndrome Society Board Member and Co-Author of “Count Us In” Often, people think individuals with Down syndrome are not capable of doing regular, everyday things. But we want to go to school, have jobs, live on our own and fulfill our dreams. When people everywhere [...]